Up to 5-10% of all children in schools have underlying visible or invisible neuro disabilities. Parents of children with neuro disabilities always have a lot of questions that need both detailed, professional answers, as well as simple, actionable answers.
Failure to find a good source of consistent information leads to increased stress levels for parents, which has a negative, knock-on effect for their children.
Although these conditions are relatively common, there is currently very little contribution from specialists and experts in neuro disabilities for parents and schools.
This platform aims to create a common forum where Parents, Schools and Doctors can share and receive information whilst providing treatment on an individual basis.
We have interviewed multiple schools and SENCOS about their approach to these issues. The general consensus was that a digital platform that unified and distributed information between Parents, Schools and Doctors was much needed.
“The feeling of helplessness, and the lack of support early on creates an environment that is very unhealthy for a child that is already distressed. Without the proper resources and professional guidance, it really is a one way street, heading towards a downward spiral”.
“The trauma and stress that the parents experience always gets passed onto the children, regardless of how hard they try not to let it affect them. The truth is, no parent can hold that amount of stress and trauma inside of them and not let it affect their child”.
The creator of the course, Dr Rahul Bharat, is an experienced clinician working as an expert in the field of Neurodisability and Epilepsy. Every day he meets with families who are concerned about their children’s neuro developmental issues. After meeting with so many parents, it has become clear to him that there is a huge disconnect between the specialist making the diagnosis and the support system provided for the child.
Some parents might reject a diagnosis, whilst others may think it is the wrong diagnosis, or that there are other undetected issues in addition to the diagnosis.
Establishing the right diagnosis as early as possible is crucial to providing the help and support these children need.
Understand your child's diagnosis. What it means for now and what to expect going forward.
The common problems, strengths and weaknesses associated with that diagnosis.
The essential 'do's and don’ts' based on the evidence.
Selection of the course:
The courses for schools will be found in the ‘School’ page of the website. Simply click on this page to see all of the courses designed specifically for schools. To enrol more than 10 students please contact us directly.
Selection of the topic and reasons:
i. Diagnostic Criteria: How a professional makes a diagnosis and what the guidelines are. The terminology used by the doctor and what each term means. This information aids in addressing diagnosis denial in parents. This also helps to clarify for parents who suspect an additional, different or undetected diagnosis in children.
ii. Problems in that diagnosis: How will a child behave according to that diagnosis? This could be related to their neuro development, general behaviour towards others or within another problem like Epilepsy. This information helps to provide clarity to parents so that they can be sure that they have received the right diagnosis. We have also included information on the long term symptoms of each diagnosis.
iii. Early intervention: This helps parents understand what the child is actually experiencing. It highlights the child’s difficulties with daily tasks or comprehension. Clear information is provided to help parents make a difference in their child’s life, as well as making daily tasks and comprehension much easier. Regardless of the same diagnosis, every child is unique, and their difficulties will vary. All parents should measure the developmental age of their child and note any behavioural patterns. Parents who do this will have a great insight into their child’s specific issue and will be able to get great results with our early intervention programme.
iv. Other problems: Other areas that can be affected like: sleep, behaviour, diet, Epilepsy, and movement disorders. Issues in these areas commonly exist and significantly affect the child’s the quality of life. These areas are often not identified early enough. When they are identified, there usually isn’t a clear enough plan or approach to address these problems. Addressing these problems early and in the correct way, is highly beneficial for the child. Having this information empowers parents to provide the care and support their child needs.
Purpose of the quiz:
The purpose of the quiz is to reinforce each learning point. To pass the quiz, you will need to answer 80% of the questions correctly. This encourages the learner to go over the course material again, which reinforces the information and enables parents to deliver the correct treatment for their child.
Support for the parents:
Webinars and Events:
We host regular online events which are designed to supplement the online courses. We regularly invite leading experts to speak and present new research and evidence on neuro disability. We also take this time to answer any questions that parents might have. We encourage all parents to write their questions on the public forum to help guide us on future topics for Webinars and events.
The feedback forms are built into the course. Please complete the feedback form to let us know your thoughts and how we can improve our programme. Our mission is to enhance the lives of every child, and your feedback is imperative for us to know what we are doing well and what we can improve on. By providing valuable feedback you are significantly contributing to our work.
A fantastic clear, simple website that explains vocabulary and terms used. The videos within it are superb.By Becky Prior